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PDMeasure: collecting Parkinson's Disease data using online surveys and tests.

 

Getting started in just 10 minutes

1. Register

2. Do Survey 1.

3. Do Test 1.

4. Do medications survey.

... and every day

Repeat Test 1 at least daily.

Objectives

To measure the extent to which the tap test results:
- are affected by learning, time since last medication, disease duration and gender;
- distinguish between PwP and healthy people;
- are affected by the medications taken.

PDMeasure Rules

RESPONSIBILITY.Users must take full responsibility for themselves.

ANONYMITY.All data input is done anonymously.

OPENNESS.All the data collected is open to everyone to download.

CONTROL.To do the surveys and take the tests you need to be registered.

EXPERIENCE.You must be at least 25 years old.

IF YOU FEEL UNWELL DOING THE TESTS,
OR YOU FEEL UNEASY ANSWERING ANY
OF THE SURVEY QUESTIONS,

STOP.

Why PDMeasure?

To accelerate the development of effective therapies for PD.

What is PDMeasure?

PDMeasure is an integrated set of computer programs that collect, store and analyse Parkinson's Disease data. It collects both static data (e.g. the year of your diagnosis) and dynamic data (e.g. your finger tapping speed, measured online). It can merge data from one survey (e.g. your handedness) with that collected in another survey (e.g. your city) and it can merge your data from the past with that from the present (e.g. the changes over time of your medications) to build up a picture of your PD. It can merge data from many people to answer questions that the data from one person could never answer (e.g. does jogging slow progression?).

Where goes PDMeasure?

More surveys. More tests. More data. More analyses.